When the care endsemotional state of spanish bereaved caregivers of persons with dementia

  1. Crespo López, María 1
  2. Piccini, Ana T. 1
  3. Bernaldo de Quirós, Mónica 1
  1. 1 Universidad Complutense de Madrid
    info

    Universidad Complutense de Madrid

    Madrid, España

    ROR 02p0gd045

Revista:
The Spanish Journal of Psychology

ISSN: 1138-7416

Año de publicación: 2013

Número: 16

Páginas: 1-8

Tipo: Artículo

DOI: 10.1017/SJP.2013.97 DIALNET GOOGLE SCHOLAR lock_openAcceso abierto editor

Otras publicaciones en: The Spanish Journal of Psychology

Resumen

Several researchers have found that caring for relatives with dementia has negative consequences on the caregiver�s physical and emotional health during the caregiving period. However, less attention has been paid to caregiver´s emotional state after the patient´s death. The aims of this study are 1) to evaluate the emotional state of the Spanish former caregivers after the care recipient death, and 2) to analyze the patient�s death circumstances and their influence in the current emotional state of caregivers. The sample was composed of 50 former caregivers of relatives diagnosed with Alzheimer�s disease. The dependent variables were assessed using the Beck Depression Inventory and the Texas Revised Inventory of Grief. Most of the caregivers did not develop a complicated grief or depressive symptoms. However, caregivers are not uniform in their responses to bereavement. Specifically, grief was higher in spouses than in adult child, even after controlling the effect of gender and age. Furthermore, this study provides first evidence of the positive relationship between saying good-bye to the patient and caregivers� emotional status.

Referencias bibliográficas

  • Aneshensel C. S., Botticello A. L., & Yamamoto-Mitani N. (2004). When caregiving ends: The course of depressive symptoms after bereavement. Journal of Health and Social Behavior, 45, 422-440. http://dx.doi.org/10.1177/002214650404500405.
  • Beck A. T., Steer R. A., & Brown G. K. (1996). Manual of the Beck Depression Inventory (BDI-II) (2nd ed.) San Antonio, TX: The Psychological Association.
  • Bernard L. L., & Guarnaccia C. A. (2002). Husband and adult-daughter caregivers bereavement. Journal of Death and Dying, 45, 153-166. http://dx.doi.org/10.2190/MXR9-MBEB-NKX6-5B83.
  • Boerner K., Schulz R., & Horowitz A. (2004). Positive aspects of caregiving and adaptation to bereavement. Psychology and Aging, 19, 668-675. http://dx.doi.org/10.1037/0882-7974.19.4.668.
  • Bonanno G. A., Boerner K., & Wortman C. B. (2008). Trajectories of grieving. In M. Stroebe, R. Hansson, H. Schut, & W. Stroebe, Handbook of bereavement research and practice: 21st century perspectives (pp. 287-307). Washington, DC: American Psychological Association Press.
  • Dozois D. J., & Covin R. (2004). The beck depression inventory- II (BDI-II), beck hopelessness scale (BHS), and beck scale of suicide (BBS). In M. Hersen, M. J. Hilsenroth, & D. L. Segal (Eds.), Comprehends Handbook of Psychological Assessment: Personality Assessment (pp. 50-69).New York, NY: John Wiley & Sons, Inc.
  • Elder G. H. (1994). Time, human agency, and social change: Perspectives on the life course. Social Psychology Quarterly, 57, 4-15.
  • Faschingbauer T. R., Zisook S., & De Vaul R. A. (1987). The Texas revised Inventory of Grief. In S. Zisook, (Ed.), Biopsychosocial aspects of bereavement (pp. 111-124). Washington, DC: American Psychiatric Press, Inc.
  • García-Alberca J. M., Cruz B., Lara J. P., Garrido V., Gris E., Lara A., & Castilla C. (2012). Disengagement coping partially mediates the relationship between caregiver burden and anxiety and depression in caregivers of people with Alzheimer's disease. Results from the MALAGA-AD study. Journal of Affective Disorders, 136, 848-856. http://dx.doi.org/10.1016/j.jad.2011.09.026.
  • García-García J. A., Landa V., Trigueros M. C., & Gaminde I. (2001). Inventario Texas Revisado de Duelo (ITRD): Adaptación al castellano, fiabilidad y validez. [Texas Revised Inventory of Grief (TRIG): Spanish adaptation, reliability and validity] Atención Primaria, 27, 86-93.
  • Haley W., Bergman E., Roth D., McVie T., Gaugler J., & Mittelman M. (2008). Long-Term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms. The Gerontologist, 48, 732-740. http://dx.doi.org/10.1093/geront/48.6.732.
  • Hebert R. S., Dang Q., & Schulz R. (2006). Preparedness for the death of a loved one and mental health in bereaved caregivers of patient with dementia: Finding from the REACH study. Journal of Palliative Medicine, 9, 683-693. http://dx.doi.org/10.1089/jpm.2006.9.683.
  • Holland J., Currier J. M., & Gallagher-Thompson D. (2009). Outcomes from the Resources for Enhancing Alzheimer's Caregiver Health (REACH) program for bereaved dementia family caregivers. Psychology and Aging, 24, 190-202. http://dx.doi.org/10.1037/a0014303.
  • IMSERSO (2005). Cuidados a las personas mayores en los hogares españoles [Care to elderly people at Spanish homes]. Madrid, Spain: Author.
  • Jacinto G. A. (2009). The self-forgiveness process of caregivers after the death of care-receivers diagnosed with Alzheimeŕs disease. Journal of Social Service Research, 36, 24-36. http://dx.doi.org/10.1080/01488370903333538.
  • Kim J. H., Knight B. G., & Flynn Longmire C. V. (2007). The role of familism in stress and coping processes among African American and White dementia caregivers: Effects on mental and physical health. Health Psychology, 26, 564-576. http://dx.doi.org/10.1037/0278-6133.26.5.564.
  • Meuser T. M., & Marwit S. J. (2001). A comprehensive, stage-sensitive model of grief in dementia caregiving. The Gerontologist, 41, 658-670. http://dx.doi.org/10.1093/geront/41.5.658.
  • Neimeyer R. A., Hogan N. S., & Laurie A. (2008). The measurement of grief: Psychometric considerations in the assessment of reactions to bereavement. In M. S. Stroebe, R. O. Hansson, H. Schut, W. Stroebe, & E. Van den Blink (Eds.), Handbook of bereavement research and practice: Advances in theory and intervention (pp.133-161) Washington D.C., WA: American Psychological Association.
  • Piccini A. T., Bernaldo de Quirós M., & Crespo M. (2012). Estado emocional y duelo en cuidadores de familiares de enfermos con demencia tras el fallecimiento del paciente: Una revisión sistemática [Emotional state and bereavement in relatives of people with dementia after the death of the patient: A systematic review]. Ansiedad y Estrés, 18, 103-117.
  • Pinquart M., & Sörensen S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18, 250-267. http://dx.doi.org/10.1037/0882-7974.18.2.250.
  • Pinquart M., & Sörensen S. (2006). Gender differences in caregiver stressors, social resources, and heath: An update meta-analysis. Journal of Gerontology, 61, 33-45. http://dx.doi.org/10.1093/geronb/61.1.P33.
  • Pritchard R. S., Fisher E. S., Teno J. M., Sharp S. M., Reding D. J., Knaus W. A., Lynn J. (1998). Influence of patient preferences and local health system characteristics on the place of death. Journal of the American Geriatrics Society, 46, 1242-1250.
  • Sanders C. M., Mauger P. A., & Strong P. (1985). A manual for the Grief Experiencie Inventory. Colchester, VT: The Center for the Study of Separation and Loss.
  • Sanz J., Perdigón A., & Vázquez C. (2003). Adaptación española del Inventario para la Depresión de Beck-II (BDI-II): 2. Propiedades psicométricas en población general. [Spanish adaptation of Beck Depression Inventory-II: 2 Psychometric properties in community population]. Clínica y Salud, 14, 249-280.
  • Schulz R., Boerner K., Shear K., Zhang S., & Gitlin L. (2006). Predictors of complicated grief among dementia caregivers: A prospective study of bereavement. American Journal of Geriatric Psychiatry, 14, 650-658. http://dx.doi.org/10.1097/01.JGP.0000203178.44894.db.
  • Schulz R., Mendelshon A. B., Haley W. E., Mahoney D., Allen R. S., Zhang S., Belle S. H. (2003). End of life and the effects of bereavement on family caregivers of person with dementia. New England Journal of Medicine, 349, 1936-1942. http://dx.doi.org/10.1056/NEJMsa035373.
  • Tweedy M. P., & Guarnaccia C. A. (2007). Change in depression of spousal caregivers of dementia patients following patient's death. Journal of Death and Dying, 56, 217-288. http://dx.doi.org/10.2190/OM.56.3.a.
  • Vitaliano P. P, Zhang J., & Scalan J. (2003). Is caregiving hazardous to one's physical health? A meta-analysis. Psychological Bulletin, 129, 946-972. http://dx.doi.org/10.1037/0033-2909.129.6.946.
  • Zhang M., Mitchell S. L, Bambauer K. Z., Jones R., & Prigerson H. G. (2008). Depressive's symptoms trajectories and associated risk among bereaved Alzheimer's disease caregivers. American Journal of Geriatric Psychiatry, 16, 145-155. http://dx.doi.org/10.1097/JGP.0b013e318157caec.
Fuente de los datos: Dialnet