La evaluación de la carga del cuidador: una revisión más allá de la escala de Zarit
- María Crespo
- Rivas Moya, María Teresa
ISSN: 1130-5274
Any de publicació: 2015
Volum: 26
Número: 1
Pàgines: 9-15
Tipus: Article
Altres publicacions en: Clínica y salud: Investigación Empírica en Psicología
Referències bibliogràfiques
- Arai, Y., Kudo, K., Hosokawa, T., Washio, M., Miura, H. e Hisamichi, S. (1997). Reliability and validity of the Japanese version of the Zarit caregiver burden interview. Psychiatry and Clinical Neurosciences, 51, 281-287. doi: 10.1111/j.1440-1819.1997.tb03199.x
- Artaso, B., Goñi, A. y Gómez, A. R. (2001). Sobrecarga del cuidador informal del paciente con demencia: demanda en un centro de día psicogeriátrico en Navarra. Geriatrika, 17, 39-43.
- Ballesteros, J., Santos, B., González-Fraile, E., Muñoz-Hermoso, P., Domínguez-Panchón, A. I. y Martín-Carrasco, M. (2012). Unidimensional 12-item Zarit Caregiver Burden Interview for assessment of dementia caregirver’s burden obtained by item response theory. Value in Health, 15, 1141-1147. doi: 10.1016/j.jval.2012.07.005
- Bédard, M., Molloy, D. W., Pedlar, D., Lever, J. A. y Stones, M. J. (1997). Associations between dysfunctional behaviors, gender and burden in spousal caregivers of cognitively impaired older adults. International Psychogeriatrics, 9, 277-290. doi: 10.1017/S1041610297004444
- Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A. y O’Donnel, M. (2001). The Zarit Burden Interview: A new short version and screening version. The Gerontologist, 41, 652-657. doi: 10.1093/geront/41.5.652
- Brown, L. J., Potter, J. F. y Foster, B. G. (1990). Caregiver burden should be evaluated during geriatric assessment. Journal of the American Geriatric Society, 38, 455-560.
- Chou, K-R., Chu, H., Tseng, C-L. y Lu, R-B. (2003). The measurement of caregiver burden. Journal of Medical Sciences, 23(2), 73-82.
- Crespo, M. y López, J. (2007). El apoyo a los cuidadores de familiares mayores dependientes en el hogar: desarrollo del programa “Cómo mantener su bienestar”. Madrid: IMSERSO.
- Deeken, J. F., Taylor, K. L., Mangan, P., Yabroff, K. R. e Ingham, J. M. (2003). Care for the caregivers: A review of self-report instruments developed to measure the burden, needs and quality of life of informal caregivers. Journal of Pain and Symptom Management, 26, 922-953. doi: 10.1016/S0885-3924(03)00327-0
- Dura, J. R., Bornstein, R. A. y Kiecolt-Glaser, J. K. (1990). Refinements in the assessment of dementia-related behaviors: Factor structure of the Memory and Behavior Problem Checklist. Psychological Assessment: A Journal of Consulting and Clinical Psychology, 2(2), 129-133. doi: 10.1037/1040-3590.2.2.129
- Farcnik, K. y Persyko, M. S. (2002). Assessment, measures and approaches to easing caregiver burden in Alzheimer’s disease. Drugs Aging, 19, 203-215. doi: 10.2165/00002512-200219030-00004
- George, L. K. y Gwyther, L. P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253- 259. doi: 10.1093/geront/26.3.253
- Gort, A. M., March, J., Gómez, X., de Miguel, M., Mazarico, S. y Ballesté, J. (2005). Escala de Zarit reducida en cuidados paliativos. Medicina Clínica, 124, 651-653. doi: 10.1157/13074742
- Gort, A. M., Mazarico, S., Ballesté, J., Barberá, J., Gómez, X. y de Miguel M. (2003). Uso de la escala de Zarit en la valoración de la claudicación en cuidados paliativos. Medicina Clínica, 121, 132-133. doi: 10.1016/S0025-7753(03)73880-9
- Gort, A. M., Mingot, M., Gómez, X., Soler, T., Torres, G., Sacristán, O., ... Cabau, J. (2007). Use of the Zarit scale for assessing caregiver burden and collapse in caregiving at home in dementias. International Journal of Geriatric Psychiatry, 22, 957-962. doi: 10.1002/gps.1770
- Grad, J., D’Alarcon y Sainsbury, P. (1965). An evaluation of the effects of caring for aged at home. Psychiatric Disorders in the aged. W.P.A. Symposium, Manchester.
- Grad, J. y Sainsbury, P. (1963). Mental illness and the family. Lancet, 1, 544-547. doi: 10.1016/S0140-6736(63)91339-4
- Guerra-Silla, M. G., Gutiérrez-Robledo, L. M., Villalpando-Berumen, J. M., PérezZepeda, M. U., Montana-Álvarez, M., Reyes-Guerrero, J. y Rosas-Carrasco, O. (2011). Psychometric evaluation of a Spanish language version of the Screen for Caregiver Burden (SCB) in caregivers of patients with mixed, vascular and Alzheimer’s dementia. Journal of Clinical Nursing, 20, 23-24. doi: 10.1111/j.1365-2702.2010.03658.x
- Gutiérrez-Maldonado, J., Caqueo-Urízar, A. y Kavanagh, D. J. (2005). Burden of care and general health in families of patients with schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 40, 899-904. doi: 10.1007/s00127-005-0963-5
- Hébert, R., Bravo, G. y Préville, M. (2000). Reliability, validity and reference values of the Zarit Burden Interview for assessing informal caregivers of communitydwelling older persons with dementia. Canadian Journal on Aging, 19, 494-507. doi: 10.1017/S0714980800012484
- Higginson, I. J., Gao, W., Jackson, D., Murray, J. y Harding, R. (2010). Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. Journal of Clinical Epidemiology, 63, 535-542. doi: 10.1016/j.jclinepi.2009.06.014
- Hoenig, J. y Hamilton, M. W. (1965). Extramural care of psychiatric patients. Lancet, i, 1322-1325. doi: 10.1016/S0140-6736(65)92801-1
- Hoenig, J. y Hamilton, M. W. (1966). The schizophrenia patient in the community and his effect on the household. International Journal of Social Psychiatry, 12, 165-176. doi: 10.1177/002076406601200301
- Hoenig, J. y Hamilton, M. W. (1967). The burden on the household in an extramural psychiatric service. En Freeman, H. (Ed.), New aspects of Mental Health Services (pp. 612-635). Londres: Pergamon Press.
- Kasuya, R. T., Polgar-Bailey, P. y Takeuchi, R. (2000).Caregiver burden and burnout: A guide for primary care physicians. Postgraduate Medicine, 108(7), 119-123. doi: 10.3810/pgm.2000.12.1324
- Knight, B. G., Fox, L. S. y Chou, C. (2000). Factor structure of the Burden Interview. Journal of Clinical Geropsychology, 6, 249-258. Doi: 10.1023/A:1009530711710
- Knight, B. G., Lutzky, S. M. y Macofsky-Urban, F. (1993). A meta-analytic review of recommendation for caregiver distress: Recommendations for future research. The Gerontologist, 33, 240-248. doi: 10.1093/geront/33.2.240
- Kosberg, J. I. y Cairl, R. E. (1986). The Cost of Care Index: A case management tool for screening informal care providers. The Gerontologist, 26, 273-278. doi: 10.1093/ geront/26.3.273
- López, S. R. y Moral, M. S. (2005). Validación del Índice de Esfuerzo del Cuidador en la población española. Enfermería Comunitaria, 1(1), 12-17.
- Losada, A., Montorio, I., Izal, M. y Márquez, M. (2005). Estudio e intervención sobre el malestar psicológico de los cuidadores de personas con demencia. El papel de los pensamientos disfuncionales. Madrid: IMSERSO.
- Martín, M. C. (2004). Diseño y validación de cuestionarios. Matronas Profesión, 5(17), 23-29.
- Martín, M., Ballesteros, J., Ibarra, N., Loizaga, C., Serrano, B., Larumbe, M. J., … Belenguer, C. (2002). Sobrecarga del cuidador de pacientes con enfermedad de Alzheimer y distrés psíquico. Una asociación relegada en la valoración de las demencias. Actas Españolas de Psiquiatría, 30, 201-206. Recuperado de http://www. psiquiatria.com/articulos/psicogeriatria/neuropsiquiatria/demencias/8597
- Martín, M., Domínguez, A.I., Muñoz, P., González, E. y Ballesteros, J. (2013). Instrumentos para medir la sobrecarga en el cuidador informal del paciente con demencia. Revista Española de Geriatría y Gerontología, 48, 276-284.
- Martín, M., Salvadó, I., Nadal, S., Miji, L. C., Rico, J. M., Lanz, P. y Taussing, M. I. (1996). Adaptación para nuestro medio de la Escala de Sobrecarga del Cuidador (Caregiver Burden Interview) de Zarit. Revista de Gerontología, 6, 338-346.
- Molloy, D. W., Lever, J. A., Bédard, M., Guyatt, G. H. y Butt, G. M. L. (1996). Burden in caregivers of older adults with impaired cognition: The relationship with dysfunctional behaviors, daily living and mood. Annals of the Royal College of Physicians and Surgeons of Canada, 29, 151-154.
- Montgomery, R. J., Gonyea, J. G. y Hooyman, N. R. (1985). Caregiving and the experience of subjective and objective burden. Family Relations, 34, 19-26. doi: 10.2307/583753
- Montorio, I., Izal, M., López, A. y Sánchez, M. (1998). La entrevista de carga del cuidador. Utilidad y validez del concepto de carga. Anales de Psicología, 14, 229-248.
- Novak, M. y Guest, C. (1989). Application of a multidimensional Caregiver Burden Inventory. The Gerontologist, 29, 798-803. doi: 10.1093/geront/29.6.798
- Olshevski, J. L., Katz, A. D. y Knight, B. G. (1999). Stress reduction for caregivers. Philadelphia: Brunner/Mazel.
- O’Rourke, N. y Tuokko, H.A. (2003). Psychometric properties of an abridge version of the Zarit Burden Interview within a representative Canadian caregiver sample. Gerontologist, 4, 121-127.
- Pearlin, L. I., Mullan, J. T., Semple, S. J. y Skaff, M. M. (1990). Caregiving and stress process: An overview of concepts and their measures. Gerontologist, 30, 583-594. doi: 10.1093/geront/30.5.583
- Pinquart, M. y Sörensen, S. (2003). Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: A meta-analysis. The Journals of Gerontology, 58B, 112-128. doi: 10.1093/geronb/58.2.P112
- Pinquart, M. y Sörensen, S. (2006). Helping caregivers of persons with dementia: Which interventions work and how large are their effects? International Psychogeriatrics, 18, 577-595. doi: 10.1017/S1041610206003462
- Platt, S. y Hirsch, S. (1981). The effects of brief hospitalization upon the psychiatric patient’s household. Acta Psychiatrica Scandinavaca, 64, 199-216. doi: 10.1111/j.1600-0447.1981.tb00776.x
- Regueiro Martínez, A. A., Pérez-Vázquez, A., Gomara Villabona, S. M. y Ferreiro Cruz, M. C. (2007). Short Zarit interview on burden of care for caregivers in primary care. Atención Primaria, 39, 185-188.
- Rinaldi, P., Spazzafumo, L., Mastriforti, R., Mattioli, P., Marvardi, M., Polidori, M.C., … Grupo de estudio de envejecimiento cerebral de la Sociedad Italiana de Gerontología y Geriatría (GSIC-SIGG) (2005). Predictors of high level of burden and distress in caregivers of demented patients: Results of an Italian multicenter study. International Journal of Geriatric Psychiatry, 20, 168-174. doi: 10.1002/gps.1267
- Rivera-Navarro, J., Morales-González, J. M. y Benito-León, J. (2003). Informal caregiving in multiple sclerosis patients: Data from the Madrid Demyelinating Disease Group study. Disability and Rehabilitation, 25, 1057-1064. doi: 10.1080/0963828031000137766
- Robinson, B. C. (1983). Validation of a Caregiver Strain Index. Journal of Gerontology, 38, 344-348. doi: 10.1093/geronj/38.3.344
- Rogero, J. (2010). Los tiempos del cuidado. El impacto de la dependencia de los mayores en la vida cotidiana de sus cuidadores. Madrid: IMSERSO.
- Scholte op Reimer, W. J. M., de Haan, R. J., Pijnenborg, J. M. A., Limburg, M. y van den Bos, G. A. M. (1998). Assessment of burden in partners of stroke patients with the Sense of competence Questionnaire. Stroke, 29, 373-379.
- Schulz, R., Gallagher-Thompson, D., Haley, W. y Czaja, S. (2000). Understanding the interventions process: A theoretical/conceptual framework for intervention approaches to caregiving. En R. Schulz (Ed.), Handbook on dementia caregiving. Evidence-based interventions for family caregivers (pp. 30-60). Nueva York: Springer Publishing Company.
- Taub, A., Andreoli, S. B. y Bertolucci, P. H. (2004). Dementia caregiver burden: Reliability of the Brazilian version of the Zarit caregiver burden interview. Cadernos de Saúde Pública, 20, 372-376. doi: 10.1590/S0102-311X2004000200004
- Teri, L., Truax, P., Logsdon, R., Uomoto, J., Zarit, S. y Vitaliano, P. P. (1992). Assessment of behavioral problems in dementia: The Revised Memory and Behavior Problems Checklist. Psychology and Aging, 7, 622-631. doi: 10.1037/0882-7974.7.4.622
- Thornton, M. y Travis, S. (2003). Analysis of the reliability of the Modified Caregiver Strain Index. Journal of Gerontology: Social Sciences, 58B, 127-132. doi: 10.1093/ geronb/58.2.S127
- Turró, O., Soler, O., Garre, J., López, S., Vilalta, J. y Monserrat, S. (2008). Distribución factorial de la carga en cuidadores de pacientes con enfermedad de Alzheimer. Revista de Neurología, 46, 582-588.
- Vitaliano, P. P., Russo, J., Young, H. M., Becker, J. y Maiuro, R. D. (1991). The Screen for Caregiver Burden. The Gerontologist, 31, 76-83. doi: 10.1093/geront/31.1.76
- Vitaliano, P. P., Russo, J., Young, H. M., Teri, L. y Maiuro, R. D. (1991). Predictors of burden in spouse caregivers of individuals with Alzheimer’s disease. Psychology and Aging, 6, 392-402. doi: 10.1037/0882-7974.6.3.392
- Vitaliano, P. P., Young, H. M. y Russo, J. (1991). Burden: A review of measures used among caregivers of individuals with dementia. The Gerontologist, 31, 67-75. doi: 10.1093/geront/31.1.67
- Whitlatch, C. J., Zarit, S. H. y von Eye A. (1991). Efficacy of interventions with caregivers: A reanalysis. The Gerontologist, 31, 9-14. doi: 10.1093/geront/31.1.9
- Zarit, S. H., Antony, C. R. y Boutselis, M. (1987). Interventions with caregivers of dementia patients: Comparison of two approaches. Psychology and Aging, 2, 225- 232. doi: 10.1037/h0088459
- Zarit, S. H., Orr, N. K. y Zarit, J. M. (1985). Families under stress: Caring for the patient with Alzheimer’s disease and related disorders. New York: University Press.
- Zarit, S. H., Reever, K. E. y Bach-Peterson, J. (1980). Relatives of the impaired elderly. Correlates of feelings of burden. Gerontologist, 20, 649-654. doi: 10.1093/ geront/20.6.649
- Zarit, S. H. y Zarit, J. M. (1983). The Memory and Behavior Problem Checklist and the Burden Interview (Technical Report). Pennsylvania: Pennsylvania State University.