Los deseos de información en pacientes con cáncer avanzado

  1. José Miguel Navarro Jiménez 1
  2. Juan Antonio Cruzado 2
  3. Alfredo Dominguez Cruz 3
  4. Beatriz García García 3
  5. Yolanda Horando López 4
  6. María Jesús Boya Cristia 3
  1. 1 Hospital Perpetuo Socorro
    info

    Hospital Perpetuo Socorro

    Alicante, España

    ROR https://ror.org/05kwhtp56

  2. 2 Universidad Complutense de Madrid
    info

    Universidad Complutense de Madrid

    Madrid, España

    ROR 02p0gd045

  3. 3 Hospital Universitario de Getafe
    info

    Hospital Universitario de Getafe

    Getafe, España

    ROR https://ror.org/01ehe5s81

  4. 4 Centro de especialidades Los Ángeles
Mostra les afiliacions +
Revista:
Psicooncología: investigación y clínica biopsicosocial en oncología

ISSN: 1696-7240

Any de publicació: 2022

Volum: 19

Número: 1

Pàgines: 139-151

Tipus: Article

DOI: 10.5209/PSIC.80803 DIALNET GOOGLE SCHOLAR lock_openAccés obert editor

Altres publicacions en: Psicooncología: investigación y clínica biopsicosocial en oncología

Resum

: Objective: to study the desire for information in patients with avanzado cancer, and the variables associated with it. Method: Ninety patients with avanzado cancer were evaluated through a structured interview about the information of their disease of the following types: Diagnosis, cure, severity, goal of treatment and time for the end of life, and their desire to have information about each of these five types of information. In addition, sociodemographic and clinical data were collected and administered: the Functional Capacity Scale, the Charlson Comorbidity Index and the Hospital Anxiety and Depression Scale. Results. The results showed that most patients are informed about the diagnosis and its severity, but scarcely about the goals of treatment, cure and end-of-life. Of the uninformed patients, 77.8% (14) wanted to know the diagnosis, 60.0% (11) the severity, 77.8% (35) the treatment goal, 76.7% (24 ) healing and 34.4% (10) end-of-life. The variables associated with the desire for: a) diagnostic information were: having a younger primary caregiver (p=.023); with a partner (p=.018), non-religious (p=.025) and a greater number of visits to the emergency room (p=.004); b) severity information were: being young (p=.009); with a partner (p=.04), and low depression (p=.009); C). Information about the goals of treatment: being young (p=.001), being in a relationship (p=.04), and low depression (p=.001). d) information about healing: being a man (p=.018), with a partner (p=.04), not religious (p=.023). In the case of lifetime information, no significant difference was found. Conclusions: it is necessary to evaluate the information and desires that patients have about the different types of information, so the creation of a standardized tool in future research is a priority. Most patients with advanced cancer are informed about the diagnosis and severity, but there is a lack of information about the cure, the goals of treatment and, above all, about the end-of-life. It is important that a high percentage of patients who are not informed do desire to receive information, mainly about the objectives of the treatment and the curative effect, especially the younger ones, with a partner and non-religious and with low symptoms of depression. An optimal quality of care for patients with avanzado cancer requires satisfy their desires for information

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