Eutanasia y Psicología. Algunas claves para la intervención en Procesos Adelantados de Muerte

  1. Ibáñez del Prado, Celia 1
  1. 1 Universidad Complutense de Madrid
    info

    Universidad Complutense de Madrid

    Madrid, España

    ROR 02p0gd045

Revista:
Psicooncología: investigación y clínica biopsicosocial en oncología

ISSN: 1696-7240

Año de publicación: 2022

Volumen: 19

Número: 2

Páginas: 327-338

Tipo: Artículo

DOI: 10.5209/PSIC.84044 DIALNET GOOGLE SCHOLAR lock_openAcceso abierto editor

Otras publicaciones en: Psicooncología: investigación y clínica biopsicosocial en oncología

Resumen

Los países que han optado por regular los Procesos Adelantados de Muerte (PAM) van en aumento en los últimos años. Este tipo de legislaciones implican directamente a los equipos sanitarios.Los psicólogos incluidos en estos equipos están en contacto con estos procesos, por lo que se torna imprescindible dilucidar, mediante la escasa literatura existente, si los PAM presentan variables diferenciales con otros procesos de muerte, que sean necesarias tener en cuenta durante la asistencia psicológica. Esta recopilación de literatura pretende plantear las diferencias que en la actualidad están contrastadas y plantear qué opciones de intervención psicológica están a nuestra disposición para realizar el acompañamiento a estas personas, sus cuidadores y los equipos sanitarios que los asisten.

Referencias bibliográficas

  • 1. Ley Orgánica 3/2021, de 24 de marzo, de regulación de la eutanasia. «BOE» núm. 72, de 25 de marzo de 2021, [Acceso 1 de septiembre de 2022]. Disponible en: https://www. boe.es/eli/es/lo/2021/03/24/3
  • 2. Marina S, Wainwright T, Ricou M. The role of psychologists in requests to hasten death: A literature and legislation review and an agenda for future research. Int J Psychol 2021; 56: 64-74. https://doi.org/10.1002/ijop.12680.
  • 3. Arranz P, Cancio H. Counselling: Habilidades de información y comunicación con el paciente oncológico. En: Manual de Psico-Oncología. NovaSidonia Madrid 2000 39-56
  • 4. Robinson S, Kissane DW, Brooker J, Hempton C, Burney S. The relationship between poor quality of life and desire to hasten death: A multiple mediation model examining the contributions of depression, demoralization, loss of control, and low self-worth. J Pain Symptom Manage 2017;53:243-9. https://doi.org/10.1016/j.jpainsymman.2016.08.013.
  • 5. Caruso R, Sabato S, Nanni MG, Hales S, Rodin G, Malfitano C, et al. Application of Managing Cancer and Living Meaningfully (CALM) in advanced cancer patients: an italian pilot study. Psychother Psychosom 2020;89:402-4. https://doi.org/10.1159/000505875.
  • 6. An E, Wennberg E, Nissim R, Lo C, Hales S, Rodin G. Death talk and relief of deathrelated distress in patients with advanced cancer. BMJ Support Palliat Care 2020;10:e19. https://doi.org/10.1136/bmjspcare-2016-001277.
  • 7. Rodin G, Lo C, Rydall A, Shnall J, Malfitano C, Chiu A, Panday T, et al. Managing Cancer and Living Meaningfully (CALM): A randomized controlled trial of a psychological intervention for patients with advanced cancer. J Clin Oncol 201810;36:2422-32. https:// doi.org/10.1200/JCO.2017.77.1097.
  • 8. Jones JM, Huggins MA, Rydall AC, Rodin GM. Symptomatic distress, hopelessness, and the desire for hastened death in hospitalized cancer patients. J Psychosom Res 2003;55:411-8. https://doi.org/10.1016/s0022-3999(03)00526-9.
  • 9. Monforte-Royo C, Villavicencio-Chávez C, Tomás-Sábado J, Balaguer A. The wish to hasten death: a review of clinical studies. Psychooncology 2011;20:795-804. https://doi. org/10.1002/pon.1839.
  • 10. Villavicencio-Chávez C, Monforte-Royo C, Tomás-Sábado J, Maier MA, Porta-Sales J, Balaguer A. Physical and psychological factors and the wish to hasten death in advanced cancer patients. Psychooncology 2014;23:1125-32. https://doi.org/10.1002/pon.3536.
  • 11. Wilson KG, Dalgleish TL, Chochinov HM, Chary S, Gagnon PR, Macmillan K, et al. Mental disorders and the desire for death in patients receiving palliative care for cancer. BMJ Support Palliat Care 2016;6:170-7. https://doi.org/ 10.1136/bmjspcare-2013-000604.
  • 12. Breitbart W, Rosenfeld B, Gibson C, Kramer M, Li Y, Tomarken A, et al. Impact of treatment for depression on desire for hastened death in patients with advanced AIDS. Psychosomatics 2010;51:98-105. https://doi.org/10.1176/appi.psy.51.2.98.
  • 13. Wilson KG, Graham ID, Viola RA, Chater S, de Faye BJ, Weaver LA, Lachance JA. Structured interview assessment of symptoms and concerns in palliative care. Can J Psychiatry 2004;49:350-8. https://doi.org/10.1177/070674370404900603.
  • 14. Balaguer A, Monforte-Royo C, Porta-Sales J, Alonso-Babarro A, Altisent R, AradillaHerrero A et al. International consensus definition of the wish to hasten death and its related factors. PLoS One 2016; 11: e0146184. https://doi.org/10.1371/journal.pone.0146184
  • 15. Julião M, Barbosa A, Oliveira F, Nunes B. Prevalence and factors associated with desire for death in patients with advanced disease: results from a Portuguese cross-sectional study. Psychosomatics 2013;54:451-7. https://doi.org/10.1016/j.psym.2013.01.006.
  • 16. Emanuel EJ, Fairclough DL, Emanuel LL. Attitudes and desires related to euthanasia and physician-assisted suicide among terminally ill patients and their caregivers. JAMA 2000;15;284:2460-8. https://doi.org/10.1001/jama.284.19.2460.
  • 17. Chochinov HM, Wilson KG, Enns M, Mowchun N, Lander S, Levitt M, Clinch JJ. Desire for death in the terminally ill. Am J Psychiatry 1995;152:1185-91. https://doi.org/ 10.1176/ajp.152.8.1185.
  • 18. Breitbart W, Rosenfeld B, Pessin H, Kaim M, Funesti-Esch J, Galietta M, Nelson CJ, Brescia R. Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer. JAMA 2000;3;284:2907-11. https://doi.org/10.1001/jama.284.22.2907.
  • 19. Freeman S, Smith TF, Neufeld E, Fisher K, Ebihara S. The wish to die among palliative home care clients in Ontario, Canada: A cross-sectional study. BMC Palliat Care 2016;29;15:24. https://doi.org/ 10.1186/s12904-016-0093-8.
  • 20. Mystakidou K, Parpa E, Katsouda E, Galanos A, Vlahos L. Influence of pain and quality of life on desire for hastened death in patients with advanced cancer. Int J Palliat Nurs 2004;10:476-83. https://doi.org/ 10.12968/ijpn.2004.10.10.16211.
  • 21. Kim YA, Bogner HR, Brown GK, Gallo JJ. Chronic medical conditions and wishes to die among older primary care patients. Int J Psychiatry Med 2006;36:183-98. https://doi.org/ 10.2190/3QXD-UR0H-K8FH-2CU8.
  • 22. Price A, Lee W, Goodwin L, Rayner L, Humphreys R, Hansford P, et al. Prevalence, course and associations of desire for hastened death in a UK palliative population: a cross-sectional study. BMJ Support Palliat Care 2011;1:140-8. https://doi.org/10.1136/ bmjspcare-2011-000011.
  • 23. Güell E, Ramos A, Zertuche T, Pascual A. Verbalized desire for death or euthanasia in advanced cancer patients receiving palliative care. Palliat Support Care 2015;13:295- 303. https://doi.org/10.1017/S1478951514000121.
  • 24. Rodin G, Zimmermann C, Rydall A, Jones J, Shepherd FA, Moore M, et al. The desire for hastened death in patients with metastatic cancer. J Pain Symptom Manage 2007;33:661- 75. https://doi.org/10.1016/j.jpainsymman.2006.09.034.
  • 25. Ganzini L, Silveira MJ, Johnston WS. Predictors and correlates of interest in assisted suicide in the final month of life among ALS patients in Oregon and Washington. J Pain Symptom Manage 2002;24:312-7. https://doi.org/10.1016/s0885-3924(02)00496-7.
  • 26. Kelly B, Burnett P, Pelusi D, Badger S, Varghese F, Robertson M. Factors associated with the wish to hasten death: a study of patients with terminal illness. Psychol Med 2003;33:75-81. https://doi.org/ 10.1017/s0033291702006827.
  • 27. Mystakidou K, Rosenfeld B, Parpa E, Katsouda E, Tsilika E, Galanos A, et al. Desire for death near the end of life: the role of depression, anxiety and pain. Gen Hosp Psychiatry 2005;27:258-62. https://doi.org/10.1016/j.genhosppsych.2005.02.004.
  • 28. Shim EJ, Hahm BJ. Anxiety, helplessness/hopelessness and ‘desire for hastened death’ in Korean cancer patients. Eur J Cancer Care 2011;20:395-402. https://doi.org/10.1111/ j.1365-2354.2010.01202.x.
  • 29. Ganzini L, Goy ER, Dobscha SK. Prevalence of depression and anxiety in patients requesting physicians’ aid in dying: cross sectional survey. BMJ 2008;337:a1682. https:// doi.org/10.1136/bmj.a1682.
  • 30. Wilson KG, Chochinov HM, McPherson CJ, Skirko MG, Allard P, Chary S, et al. Desire for euthanasia or physician-assisted suicide in palliative cancer care. Health Psychol 2007;26:314-23. https://doi.org/10.1037/0278-6133.26.3.314.
  • 31. Wilson KG, Scott JF, Graham ID, Kozak JF, Chater S, Viola RA, et al. Attitudes of terminally ill patients toward euthanasia and physician-assisted suicide. Arch Intern Med 2000;160:2454-60. https://doi.org/10.1001/archinte.160.16.2454.
  • 32. Wang YC, Lin CC. Spiritual well-being may reduce the negative impacts of cancer symptoms on the quality of life and the desire for hastened death in terminally ill cancer patients. Cancer Nurs 2016;39:E43-50. https://doi.org/10.1097/NCC.0000000000000298.
  • 33. McClain CS, Rosenfeld B, Breitbart W. Effect of spiritual well-being on end-oflife despair in terminally-ill cancer patients. Lancet 2003;361:1603-7. https://doi. org/10.1016/S0140-6736(03)13310-7.
  • 34. Morita T, Sakaguchi Y, Hirai K, Tsuneto S, Shima Y. Desire for death and requests to hasten death of Japanese terminally ill cancer patients receiving specialized inpatient palliative care. J Pain Symptom Manage 2004;27:44-52. https://doi.org/10.1016/j. jpainsymman.2003.05.001.
  • 35. Crespo I, Rodríguez-Prat A, Monforte-Royo C, Wilson KG, Porta-Sales J, Balaguer A. Health-related quality of life in patients with advanced cancer who express a wish to hasten death: A comparative study. Palliat Med 2020;34:630-8. https://doi. org/10.1177/0269216320904607.
  • 36. Johnson SM, Cramer RJ, Conroy MA, Gardner BO. The role of and challenges for psychologists in physician assisted suicide. Death Stud 2014;38:582-8. https://doi.org/1 0.1080/07481187.2013.820228.
  • 37. Schroepfer TA. Critical events in the dying process: the potential for physical and psychosocial suffering. J Palliat Med 2007;10:136-47. https://doi.org/10.1089/ jpm.2006.0157.
  • 38. Rosenfeld B, Breitbart W, Stein K, Funesti-Esch J, Kaim, M, Krivo S, et al. Measuring desire for death among patients with HIV/AIDS: The schedule of attitudes toward hastened death. Am J Psychiatry 1999;156: 94-100. https://doi.org/10.1176/ajp.156.1.94.
  • 39. Monforte-Royo C, González-de Paz L, Tomás-Sábado J, Rosenfeld B, Strupp J, Voltz R, et al. Development of a short form of the Spanish schedule of attitudes toward hastened death in a palliative care population. Qual Life Res 2017;26:235-9. https://doi. org/10.1007/s11136-016-1409-0.
  • 40. Chochinov HM, Wilson KG, Enns M, Mowchun N, Lander S, Levitt M, et al. Desire for death in the terminally ill. Am J Psychiatry 1995;152:1185-91. https://doi.org/ 10.1176/ ajp.152.8.1185.
  • 41. Bellido-Pérez M, Monforte-Royo C, Tomás-Sábado J, Porta-Sales J, Balaguer A. Assessment of the wish to hasten death in patients with advanced disease: A systematic review of measurement instruments. Palliat Med 2017;31:510-525. https://doi.org/ 10.1177/0269216316669867.
  • 42. Ohnsorge K, Gudat H, Rehmann-Sutter C. What a wish to die can mean: reasons, meanings and functions of wishes to die, reported from 30 qualitative case studies of terminally ill cancer patients in palliative care. BMC Palliat Care 2014;31;13:38. https:// doi.org/10.1186/1472-684X-13-38.
  • 43. Rodríguez-Prat A, Balaguer A, Booth A, Monforte-Royo C. Understanding patients’ experiences of the wish to hasten death: an updated and expanded systematic review and meta-ethnography. BMJ Open 2017; 29;7(9):e016659. https://doi.org/10.1136/ bmjopen-2017-016659.
  • 44. Ricou M, Wainwright T. The psychology of euthanasia: Why there are no easy answers. Eur Psychologist 2019 24: 243-56. https://doi.org/ 10.1027/1016-9040/a000331.
  • 45. Gamondi C, Pott M, Forbes K, Payne S. Exploring the experiences of bereaved families involved in assisted suicide in Southern Switzerland: a qualitative study. BMJ Support Palliat Care 2015;5:146-52. https://doi.org/ 10.1136/bmjspcare-2013-000483.
  • 46. Kelly B, Handley T, Kissane D, Vamos M, Attia J. “An indelible mark” The response to participation in euthanasia and physician-assisted suicide among doctors: a review of research findings. Pall Support Care 2019; 18:82-8 https://doi.org/ 10.1017/ S1478951519000518.
  • 47. Evenblij K, Pasman HRW, Pronk R, Onwuteaka-Philipsen BD. Euthanasia and physicianassisted suicide in patients suffering from psychiatric disorders: a cross-sectional study exploring the experiences of Dutch psychiatrists. BMC Psychiatry 2019;19:74. https:// doi.org/ 10.1186/s12888-019-2053-3.
  • 48. Colby WH, Dahlin C, Lantos J, Carney J, Christopher M. The National Consensus Project for Quality Palliative Care Clinical Practice Guidelines Domain 8: ethical and legal aspects of care. HEC Forum 2010;22:117-31. https://doi.org/ 10.1007/s10730-010-9128-3.
  • 49. Swarte NB, van der Lee ML, van der Bom JG, van den Bout J, Heintz AP. Effects of euthanasia on the bereaved family and friends: a cross sectional study. BMJ 2003;327:189. https://doi.org/ 10.1136/bmj.327.7408.189.
  • 50. Barreto P, Yi P, Soler C. Predictores de duelo complicado. Psicooncología 2008;5:383- 400.
  • 51. Andriessen K, Krysinska K, Castelli Dransart DA, Dargis L, Mishara BL. Grief after euthanasia and physician-assisted suicide. Crisis 2020;41:255-72. https://doi.org/ 10.1027/0227-5910/a000630.
  • 52. Goldberg R, Nissim R, An E, Hales S. Impact of medical assistance in dying (MAiD) on family caregivers. BMJ Support Palliat Care 2021;11:107-14 https://doi.org/10.1136/ bmjspcare-2018-001686.
  • 53. Laperle P, Achille M, Ummel D. To lose a loved one by medical assistance in dying or by natural death with palliative care: a mixed methods comparison of grief experiences. Omega (Westport) 2022;14:302228221085191. https://doi.org/ 10.1177/00302228221085191.
  • 54. Gamondi C, Pott M, Preston N, Payne S. Family caregivers’ reflections on experiences of assisted suicide in Switzerland: a qualitative interview study. J Pain Symptom Manage 2018;55:1085-1094. https://doi.org/10.1016/j.jpainsymman.2017.12.482.
  • 55. Karesa S, McBride D. A sign of the changing times? Perceptions of Canadian psychologists on assisted death. Canadian Psychology/Psychologie Canadienne. 2016;57:188-92. https://doi.org/10.1037/cap0000058.
  • 56. Sinclair C. Societal-level ethical responsibilities regarding active euthanasia: An analysis using the universal declaration of ethical principles for psychologists. Ethics Behav 2020;30:14-27. https://doi.org/10.1080/10508422.2019.1636654.