Publikationen in Zusammenarbeit mit Forschern von McGill University (24)

2024

  1. Experiences of telehealth during and after the COVID-19 pandemic and preferences for future care of people with systemic sclerosis: a cross-sectional study

    The Lancet Rheumatology

  2. Minimal Detectable Changes of the Health Assessment Questionnaire–Disability Index, Patient-Reported Outcomes Measurement Information System-29 Profile Version 2.0 Domains, and Patient Health Questionnaire-8 in People With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Cross-Sectional Study

    Arthritis Care and Research

  3. Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic: A SPIN COVID-19 Cohort Longitudinal Study

    International Journal of Behavioral Medicine

  4. The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study

    The Lancet Rheumatology, Vol. 6, Núm. 10, pp. e684-e692

2023

  1. Cutaneous Manifestations, Clinical Characteristics, and Prognosis of Patients With Systemic Sclerosis Sine Scleroderma: Data From the International EUSTAR Database

    JAMA dermatology, Vol. 159, Núm. 8, pp. 837-847

  2. Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study

    eClinicalMedicine, Vol. 62

2022

  1. Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial

    Trials, Vol. 23, Núm. 1

2021

  1. Factors associated with fears due to COVID-19: A scleroderma patient-centered intervention network (SPIN) COVID-19 cohort study

    Journal of Psychosomatic Research, Vol. 140

  2. Pain levels and associated factors in the Scleroderma Patient-centered Intervention Network (SPIN) cohort: a multicentre cross-sectional study

    The Lancet Rheumatology, Vol. 3, Núm. 12, pp. e844-e854

  3. The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

    Trials, Vol. 22, Núm. 1

2018

  1. Determinants of health-related quality of life in a multinational systemic sclerosis inception cohort

    Clinical and Experimental Rheumatology, Vol. 36, pp. S53-S60

  2. Disability, fatigue, pain and their associates in early diffuse cutaneous systemic sclerosis: The European Scleroderma Observational Study

    Rheumatology (United Kingdom), Vol. 57, Núm. 2, pp. 370-381

  3. Patterns and predictors of skin score change in early diffuse systemic sclerosis from the European Scleroderma Observational Study

    Annals of the Rheumatic Diseases, Vol. 77, Núm. 4, pp. 563-570

  4. Randomized feasibility trial of the Scleroderma patient-centered intervention network hand exercise program (SPIN-HAND): Study protocol

    Journal of Scleroderma and Related Disorders, Vol. 3, Núm. 1, pp. 91-97

  5. The scleroderma patient-centered intervention network cohort: Baseline clinical features and comparison with other large scleroderma cohorts

    Rheumatology (United Kingdom), Vol. 57, Núm. 9, pp. 1623-1631

  6. Validation of the Social Appearance Anxiety Scale in Patients With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study

    Arthritis Care and Research, Vol. 70, Núm. 10, pp. 1557-1562

  7. Validation of the social interaction anxiety scale in scleroderma: A scleroderma patientcentered intervention network cohort study

    Journal of Scleroderma and Related Disorders, Vol. 3, Núm. 1, pp. 98-105

2017

  1. Early Mortality in a Multinational Systemic Sclerosis Inception Cohort

    Arthritis and Rheumatology, Vol. 69, Núm. 5, pp. 1067-1077

  2. Treatment outcome in early diffuse cutaneous systemic sclerosis: The European Scleroderma Observational Study (ESOS)

    Annals of the Rheumatic Diseases, Vol. 76, Núm. 7, pp. 1207-1218

  3. What have multicentre registries across the world taught us about the disease features of systemic sclerosis?

    Journal of Scleroderma and Related Disorders, Vol. 2, Núm. 3, pp. 169-182