Publicaciones en colaboración con investigadores/as de University of Paris-Sorbonne (38)

2024

  1. Minimal Detectable Changes of the Health Assessment Questionnaire–Disability Index, Patient-Reported Outcomes Measurement Information System-29 Profile Version 2.0 Domains, and Patient Health Questionnaire-8 in People With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Cross-Sectional Study

    Arthritis Care and Research

  2. The association of outdoor temperature and self-reported Raynaud's phenomenon severity among people with systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study

    The Lancet Rheumatology, Vol. 6, Núm. 10, pp. e684-e692

2023

  1. Characterization and outcomes of 414 patients with primary SS who developed haematological malignancies

    Rheumatology (United Kingdom), Vol. 62, Núm. 1, pp. 243-255

  2. Cutaneous Manifestations, Clinical Characteristics, and Prognosis of Patients With Systemic Sclerosis Sine Scleroderma: Data From the International EUSTAR Database

    JAMA dermatology, Vol. 159, Núm. 8, pp. 837-847

2022

  1. Development and validation of a patient-reported outcome measure for systemic sclerosis: the EULAR Systemic Sclerosis Impact of Disease (ScleroID) questionnaire

    Annals of the rheumatic diseases, Vol. 81, Núm. 4, pp. 507-515

  2. Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial

    Trials, Vol. 23, Núm. 1

2021

  1. Factors associated with fears due to COVID-19: A scleroderma patient-centered intervention network (SPIN) COVID-19 cohort study

    Journal of Psychosomatic Research, Vol. 140

  2. Pain levels and associated factors in the Scleroderma Patient-centered Intervention Network (SPIN) cohort: a multicentre cross-sectional study

    The Lancet Rheumatology, Vol. 3, Núm. 12, pp. e844-e854

  3. The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

    Trials, Vol. 22, Núm. 1

2020

  1. Racial differences in systemic sclerosis disease presentation: A European Scleroderma Trials and Research group study

    Rheumatology (United Kingdom), Vol. 59, Núm. 7, pp. 1684-1694

  2. Tocilizumab in systemic sclerosis: a randomised, double-blind, placebo-controlled, phase 3 trial

    The Lancet Respiratory Medicine, Vol. 8, Núm. 10, pp. 963-974

2019

  1. Predictors of disease worsening defined by progression of organ damage in diffuse systemic sclerosis: A European Scleroderma Trials and Research (EUSTAR) analysis

    Annals of the Rheumatic Diseases, Vol. 78, Núm. 9, pp. 1242-1248

  2. Progressive skin fibrosis is associated with a decline in lung function and worse survival in patients with diffuse cutaneous systemic sclerosis in the european scleroderma trials and research (eustar) cohort

    Annals of the Rheumatic Diseases, Vol. 78, Núm. 5, pp. 648-656

2018

  1. Brief Report: Smoking in Systemic Sclerosis: A Longitudinal European Scleroderma Trials and Research Group Study

    Arthritis and Rheumatology, Vol. 70, Núm. 11, pp. 1829-1834

  2. Randomized feasibility trial of the Scleroderma patient-centered intervention network hand exercise program (SPIN-HAND): Study protocol

    Journal of Scleroderma and Related Disorders, Vol. 3, Núm. 1, pp. 91-97

  3. The scleroderma patient-centered intervention network cohort: Baseline clinical features and comparison with other large scleroderma cohorts

    Rheumatology (United Kingdom), Vol. 57, Núm. 9, pp. 1623-1631

  4. There is a need for new systemic sclerosis subset criteria. A content analytic approach

    Scandinavian Journal of Rheumatology, Vol. 47, Núm. 1, pp. 62-70

  5. Validation of the social interaction anxiety scale in scleroderma: A scleroderma patientcentered intervention network cohort study

    Journal of Scleroderma and Related Disorders, Vol. 3, Núm. 1, pp. 98-105

2017

  1. What have multicentre registries across the world taught us about the disease features of systemic sclerosis?

    Journal of Scleroderma and Related Disorders, Vol. 2, Núm. 3, pp. 169-182

2016

  1. A gender gap in primary and secondary heart dysfunctions in systemic sclerosis: A EUSTAR prospective study

    Annals of the Rheumatic Diseases, Vol. 75, Núm. 1, pp. 163-169