Publikationen in Zusammenarbeit mit Forschern von Assistance Publique -Hopitaux De Paris (11)

2024

  1. Experiences of telehealth during and after the COVID-19 pandemic and preferences for future care of people with systemic sclerosis: a cross-sectional study

    The Lancet Rheumatology

  2. Moderators of Loneliness Trajectories in People with Systemic Sclerosis During the COVID-19 Pandemic: A SPIN COVID-19 Cohort Longitudinal Study

    International Journal of Behavioral Medicine

2023

  1. Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered Intervention Network (SPIN) Cohort cross-sectional study

    eClinicalMedicine, Vol. 62

  2. Sex influence on outcomes of patients with systemic sclerosis-associated interstitial lung disease: A EUSTAR database analysis

    Rheumatology (United Kingdom), Vol. 62, Núm. 7, pp. 2483-2491

2022

  1. Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial

    Trials, Vol. 23, Núm. 1

  2. Stratification in systemic sclerosis according to autoantibody status versus skin involvement: a study of the prospective EUSTAR cohort

    The Lancet Rheumatology, Vol. 4, Núm. 11, pp. e785-e794

2021

  1. Factors associated with fears due to COVID-19: A scleroderma patient-centered intervention network (SPIN) COVID-19 cohort study

    Journal of Psychosomatic Research, Vol. 140

  2. The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial

    Trials, Vol. 22, Núm. 1

2018

  1. Randomized feasibility trial of the Scleroderma patient-centered intervention network hand exercise program (SPIN-HAND): Study protocol

    Journal of Scleroderma and Related Disorders, Vol. 3, Núm. 1, pp. 91-97

2016

  1. Examination of the association of sex and race/ethnicity with appearance concerns: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study

    Clinical and Experimental Rheumatology, Vol. 34, pp. 92-99

2015

  1. Prediction of worsening of skin fibrosis in patients with diffuse cutaneous systemic sclerosis using the EUSTAR database

    Annals of the Rheumatic Diseases, Vol. 74, Núm. 6, pp. 1124-1131